A Quebec family’s trip around the world as three of four children face losing their vision to a rare genetic disease is the subject of a new documentary showcasing their breathtaking travels.
Edith Lemay and Sébastien Pelletier opted for the once-in-a-lifetime adventure after they came face to face with retinitis pigmentosa, a hereditary and incurable condition.
They wanted to take their children — Mia, 13, Léo, 11, Colin,9, and Laurent, 7 — on an unforgettable journey to fill their visual memory with as many beautiful things as possible. Léo, the eldest son, is the only one without the gene.
“We just want parents to realize that no matter how bad the situation is, there’s always something good left in this situation,” Lemay said in an interview Tuesday with Global News Morning. “If you can focus on what you can do instead of what you can’t, things will be better.”
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