Saskatchewan child diagnosed with rare genetic condition faces limited treatment options [Video]

For Scarlett Hicks, everyday life is challenging, as the two-year-old lives with a long list of medical conditions.

She lives with autism, generalized epilepsy and global developmental delays. She also suffers from multiple seizures a day.

“No child should have to live like this,” Scarlett’s mom, Jas Hicks, told CTV News.

The family was unsure of what was causing the seizures. However, in August – the family finally received some answers.

“Recently, we got the metabolic’s back and we got NLRP5 gene and BRAT1 gene. We have found out that it is not good. We just don’t know how severe it is,” Jas explained.

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As Dr. Ken Myers, a pediatric neurologist at the Montreal Children’s Hospital outlines, the genes are not a good sign.

“BRAT1 is a gene in which mutations cause a range of neurodevelopmental …